Living Life, Within the Limits of Chronic Illness

Category: My Open University Journey Page 13 of 16

Getting there…

Sorry it’s been so long since I last posted, things have been pretty busy. All my energy has gone on studying with very little left for anything else! Fell behind with the reading for my course but have now caught up and submitted both assignments with almost a week to spare! 😀

Life is okay at the moment, I seem to be managing things a bit better so have got myself back on an even keel so to speak. At least I’m no longer getting worse! 😉 I have however got a nasty itchy rash on my arms which the Doctor has said feels like eczema but looks like an allergic reaction sooo I’m taking antihistamines and have got some cream for it as well. Here’s hoping that will settle it down! It’s been driving me insane and keeping me awake at night! Which is the last thing I need.

The next few weeks are full of studying…come to think of it the next few months are full of that! I’m hoping I will be able to keep ahead on this course now, as long as I don’t catch anything else I think it’s doable.

Several friends have been urging me to apply for benefits recently, although I’m not sure about it. I think it’s because I’ve been badly burned in the past – when we applied when I was 13 and almost bed bound I was turned down because my parents didn’t do any more than they would for a ‘normal’ 13 year old. At this point they were helping me wash, dress, get up and down the stairs, even cleaning my teeth! I think that experience has put me off especially as I just about manage to do those things for myself now even though it is a struggle. Any thoughts on this? Is it worth the extra stress, form filling and assessment? Right now I am relying on my parents for everything financially which I feel guilty about. I wish I could work or earn a bit of money to be able to contribute to the household.

Anyway I’m off to hit the books again! Hope to be able to write again soon!

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T215 TMA01 and CMA41 Submitted!

Well after several weeks of being behind and studying hard – around 4 hours a day in 8 30 minute sessions. I have managed to get myself ahead! (Only by a week(ish) but still ahead!!

I submitted the multiple choice CMA41 last week and after a bit of tweaking submitted the TMA01 this morning! The CMA was due in by Feb 28th and the TMA March 1st. Considering the deadlines seemed impossible to meet about 2 weeks ago when I was about a week almost two behind on the reading material I’m amazed I’ve got them in this early!! Lets hope they bring good marks in!!

Now I can make a start on block 2 and try and keep ahead. Or at least that is the plan!

Still having a few problems with my health and managing this course though. Almost all my energy is being spent on studying with so little left over I’m not doing anything else. But it will be worth it in the end right?!

So it’s onwards and upwards! I will complete this course, and hopefully get a pass! I hope to manage to start improving as well…or at least that is my goal!

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New hair, New (Old) Symptoms and lots of Sleep

I didn’t chicken out! Had a good 2 or 3 inches off my hair and now have a side swept fringe! Unfortunately haven’t really managed to get any pics – one just after the haircut when I was feeling particularly exhausted and it’s not very good quality at all. It’s taken a bit of getting used to but I like it. Really miss my longer hair though, but I can grow it back when I’m better!

I seem to have spent the majority of this week sleeping, eating and studying! Actually Monday I think I slept most of the day! But I did get out last Saturday, went into town in the wheelchair and discovered it’s a much smoother ride if I sit with two Argos catalogues in the chair with me! Apparently it seems to need the weight to balance it properly, in other words I’m too light! Really need to look into buying another one, or asking my gp about it – but I just seem to forget when I go to the doctors!

Anyway I got some new boots! 😀 Might sound like such a little thing to get excited about but I hadn’t been into town since…beginning of January or maybe end of December…and had been ‘buying’ some new boots since November! So this seems like a big achievement! However I haven’t had the chance to wear them since I bought them! But hey ho, that time will come.

This week I’ve had some new, old, symptoms come back – ones I haven’t had for yonks! A sign that things may be worse than I thought. My joints are hyper mobile again, which is causing a fair amount of pain and numerous problems. I’m sensitive to touch – my ribcage in particular cannot stand anything pressing against it so baggy t-shirts has been the order of the day, and lying down or sitting against anything immensely uncomfortable.

Consequently I now feel like the princess in ‘The Princess and the Pea’ – I had two mattress toppers on my bed, one ordinary foam, the other memory foam. Well since I wasn’t able to get comfy even then, I now have a spare duvet on top of those as well!! Which is a little better but I still can’t get that comfortable!

Also have a potentially new symptom (although think I probably have had it before – seem to remember getting the doctor to check it out) Some of my joints, most notably my fingers, feel swollen to me but don’t look it! One of the oddest symptoms I think!

Studying is not going too badly. The current material is all online and I’m finding it a little bit of a struggle. It’s also more advanced than the course, and we don’t need to read it all as most is background information and not relevant to the course. But sifting through it is quite time & energy consuming. Energy I just seem to be lacking right now, I’ll get there though! The worst thing…or maybe best thing…is that I’m finding it really interesting, it’s just quite intense, which isn’t a great combination with M.E.!

I’m trying to make some changes to my lifestyle as well at the moment. I’m currently slightly underweight and want to gain weight. However I’ve started eating healthier as my diet has become appalling over the past few weeks! Healthier but slightly bigger portions is my aim at the moment.

I’m also struggling a bit with pretty much everything – it all seems like such a grind. But I’m sure as I get more sleep, and finish this bit of online material for my course, things will get easier (fingers crossed!)

I’ve also found I’m feeling a bit anxious about things, I don’t know why or how this has come about but it’s there most days at some point. Perhaps I’m just overwhelmed by the situation I’m in at the moment, I mean I had hoped I’d never be back where I am with this illness. Who knows!? I feel like things are out of my control at the moment, but I will control what I can and just go with the rest.

Anyway I feel I’ve rambled on enough for now, apologies for the delay in posting as I’ve said things haven’t been easy this past week and a bit, so this has been a work in progress which I have now deemed fit to be published! I hope I’m right! 😉

 

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I’m glad that’s over…

A lot has happened in the two?! weeks since I last updated this blog. I’ve gotten rid of that infection once and for all, but been left with a bad relapse of the M.E.

I’ve had two 3 hour training sessions on how to use Dragon Naturally Speaking Software each a week apart, the final one yesterday. These have wiped me out but been useful nonetheless. It has had an impact on the amount of time I have been able to spend hitting the books, so to speak, for my course though! However I think I’m just about managing to keep ‘on track’ with the study calendar which is the main thing!

I’ve now been allocated a tutor as well, who is very understanding of M.E. which really helps me – right now it is impossible for me to make it to face-to-face tutorials which I always like to attend if I can. It also means that should things get difficult for me I don’t have to worry too much about asking for help.

As for life generally well, it’s not getting any easier but it’s not getting any harder either thankfully.

Tonight I am braving the chop! (As long as I don’t chicken out that is!!) Our hairdresser is coming to do our regular haircuts, except I’ve decided to have my lovely long locks cut into a bob, just above the shoulders. I love my hair long but unfortunately right now I really cannot manage to wash and brush it that easily, in fact there are days when I am unable to brush it at all!! So the only option has been to have it cut shorter and hopefully it will be easier to manage…we’ll wait and see!

Come this evening I will probably be a nervous wreck particularly when the hairdresser asks that dreaded question before making the first cut: Are you sure?; you see that always makes me wonder if they think I’m making the wrong decision!! But it’s got to happen…

I’ll let you know if I chicken out or not…!!

Plans for this week after ‘the chop’ include resting, sleeping, resting, get a few pics of the new cut and maybe get a bit of study thrown in if I can manage it! That is all.

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