Challenging?! Probably the best way to describe things these past few weeks. Had a few rough days and going through another one today.
Anyway I’m still stuck on the crutches around the house and only using the stairs first thing in the morning and last thing at night. Spending most of the day lying on the sofa or sitting propped up with my feet on a foot stool.
Most of my time has been spent studying, getting my latest assignment done and dusted. But today I submitted it for the Friday deadline! All ready to sleep for a bit now but there was music pounding through the house making that impossible so here I am blogging!
Last weekend I got OUT – Major achievement considering everything recently. And yes it’s probably ridiculous that I got so excited about a trip to a supermarket home store, but in my defence I hadn’t been out in the car for weeks! I went round the ground floor of the store in my wheelchair and wearing dark sunglasses, didn’t venture upstairs as I don’t like lifts and couldn’t get up there otherwise! I went a bit mad and bought 3 new tops for my already bulging wardrobe but hey I don’t get out much! And they were in the sale – what girl could resist?
Visited my grandparents on Monday and had lunch there. Not surprisingly I was pretty exhausted most of last week and crashed Thursday night. Not too badly but enough to say I’m going to have to start taking it easy again.
Also had a tearful heart to heart with my Dad and then my Mum on Tuesday about how ill I really am and how little I can do right now. Shared my worries for the future and current ones about studying. It really helped me to get things off my chest and get some reassurance that things will be okay. Whatever happens I’ve got them to help me through.
One friend said to me when I mentioned that I’d been wondering why I put myself through studying: “Easy – you don’t let this illness define you” And I guess they’re right, no matter how tough things get I’m determined this illness isn’t going to stop me. I’ve just got to find that balance between living my life, not letting this illness define me and making sure I get enough rest to improve so I can live a more ‘normal’ life. That in itself is the challenge that faces most people with ME or any chronic illness really.
I’m off to get some of that much needed rest now! As ever feel free to leave a comment or tweet me @smilingclare
Well I had planned on posting this last week specially for Carers Week but unfortunately I wasn’t well enough and had a few other problems on my hands. However I thought I would do it this week as it’s important to give them the recognition they deserve!!
My parents are my carers, they are unpaid and my Mum is unable to go out to work because she has to care for me. I honestly don’t know what I’d do without them!
Mum helps me wash and dress when I’m unable to do so myself. And both she and Dad cook my meals, move things for me, push my wheelchair, offer a shoulder to cry on and a listening ear. In truth they do so much for me it’s impossible to mention it all. With me being 20 years old I’m pretty sure this is the last thing they’d imagined having to do when they pictured me growing up, I know it wasn’t how I imagined life would be at 20!
Yet day in day out, 24hrs a day, 365 days a year they’re both there caring for me and my sister with only each other for support. They truly are amazing!! Without people like my parents, who work as unpaid carers, the government would be forced to pay out for carers or (more than likely in the current climate) I would be left to struggle on my own.
I’d just like to take a moment to thank all those unpaid carers who give up their time and in most cases jobs/earnings to take care of family or friends! You truly are amazing people!!
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