Smiling Clare

Living Life, Within the Limits of Chronic Illness

The End of B203

Well it’s been almost a week since I sat my exam for B203 and I’m sitting here anxiously waiting for the results, despite them not being released until July. Pointless really. But here I am.

Before I get onto my experience with the module I’ll mention that this post is peppered with links; this isn’t to annoy anyone but I figured the best way to make sure everyone understands what I’m talking about is to link Open University related language to the glossary page I’ve created on this blog. So if you don’t know what one of the linked words, acronyms or whatever means, give it a click and look it up in the glossary! I’m hoping that’s useful to some of you.

Everyone told me B203 Business Functions in Context was a tough module for anyone, let alone someone with a chronic illness, and in the end I have to agree with them. It is tough. But it is also doable.

If you’re a regular reader of this blog you’ll know I haven’t had the easiest time with my health and other things during this course. I’ve had additional viruses and infections on top of my chronic illness as well as dealing with the terminal illness and subsequent loss of a close relative. Not easy for anyone to deal with healthy or otherwise, but throw in a chronic illness like M.E and you have a real challenge on your hands.

Anyway back to B203, despite being a tough module and, in my opinion, a module with too much reading for the amount of time you’re supposed to spend on it, I thoroughly enjoyed most aspects of it. Yes some topics didn’t interest me at all but others had me enthralled. That happens with most courses.

The assignments themselves I found quite clear in what they expected you to do. The required participation in the Tutor Group Forum was difficult when I was suffering quite badly with sensitivity to light, but for the most part they were enjoyable. Discussing topics related to the course with fellow students made me feel less like I was going it alone; a feeling that can creep up on you when studying from home at a distance.

Tutorials were a fantastic resource, full of additional, helpful information for assignments, revising and the exam itself. I only managed to attend two of them, but I’m sure if I’d managed to go to more, and had slightly better health, I would have achieved better TMA marks. As it was I didn’t do badly given everything, and my tutor was always at the end of an email or the TGF if I needed help!

The books and materials…well what can I say? There’s a lot of it! The block sessions which guide you to the parts of the five books you have to read are all online, and in my case I had to spend quite a while printing each set out because I couldn’t spend long periods on the computer reading them. You don’t read all of each book but it certainly seems like you read most of each one! There’s a great pleasure at times when you’re told you can skip a chunk of the book!

Despite the sheer amount of reading B203 has been an engaging module, and I have for the most part enjoyed it. However you do need to be able to spare a lot of time and energy on it. It’s not a module you can bunk off of. You have to do the hard graft. I’d recommend trying to get ahead on the reading and staying ahead, but that’s certainly not easy and obviously not always possible. I tried but due to my health and other circumstances I found myself behind at times and it was incredibly difficult to catch up again, let alone get ahead again!

Anyway all in all B203 has been an interesting but challenging module. One which I came very close to giving up on but I’m glad I stuck with it. Now I just have to wait and see if I’ve done enough to pass it!

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Medication, Intolerances & ME

I thought I’d give you all an insight into another aspect of life with M.E. That is the world of medication and intolerances. Again this is all my personal experience and no doubt other people have different experiences.

Medication
I’ve never been on a lot of medication since getting M.E. I was on strong painkillers (naproxen) for a number of years but after realising they were partly to blame for the spaced out feeling, brain fog and fatigue I was experiencing, with my doctors consent I stopped taking them.

Since then my doctor has been reluctant to put me on any other strong painkillers due to the potential side effects. Instead I take paracetamol and ibuprofen for the pain when I need it. And by when I need it, I mean I only take it when the pain is at its worst; it only ever takes the edge off and I don’t see the point of taking something if it doesn’t really help.

I take a multivitamin most days since my diet is really quite poor, I eat the best I can but some days it’s a real struggle to eat at all so I just eat what I fancy, and not what is healthy. The multivitamin helps boost my weak immune system and means I pick up fewer viruses and infections!

Then there’s Omega 3 Fish Oil. I take this each morning and find it really helps reduce my brain fog and headache for the day. I find it very noticeable if I forget to take this one in particular.

Finally I take an anti-histamine during hayfever season, nothing to do with the M.E. other than the fact it helps reduce the hayfever symptoms and therefore the amount of stuff I have to cope with!

All in all I’m of the opinion that unless something has noticeable benefits I won’t take it. For all I know it might in fact do me more harm than good. I’m not saying this approach is right for everyone, far from it. If my doctor prescribed me something they were sure would help, I wouldn’t dismiss it straight away, I’d give it a try. But what’s the point in taking painkillers that don’t help ease the pain?

Intolerances

With M.E. comes the risk of certain intolerances. In a sense I’m lucky I only have one or two of these. But they do make eating out difficult. Currently I am almost intolerant of alcohol; I can have one or two sips before I start feeling quite dizzy and suffer as a result, so I tend to avoid it.

The more troublesome intolerance I have is fresh dairy and milk proteins. This is a difficult one to explain but I shall do my best. I should say I only found this out by a process of elimination! After eating any fresh dairy products or something with ‘milk proteins’ listed on the ingredients I get quite ill; nauseous, upset stomach and lethargic.

For this reason I now have to avoid anything that is fresh dairy and also have to carefully check ingredients of other products that contain milk. Easy enough I hear you say? Wrong. You see I can tolerate dried milk powder, dried whey powder etc. It is literally the fresh stuff and milk proteins my body dislikes. Although this gives me the benefit of not having to exclude everything that contains milk out of my diet, and means I can still enjoy a nice cup of tea made with dried skimmed milk, and ice cream if made from dried skimmed milk, reading the ingredients of items whilst shopping is not all that easy. Especially since the Allergy Advice will list milk if it contains milk powder or dried whey which I can eat. I have to check the ingredients list for ‘milk proteins’ or ‘proteins from milk’ or however else it could be worded.

When it comes to eating out things are even more difficult. How many dairy free desserts do you see on a menu or even in a shop? How many main courses come in sauces which may contain cream? Or have cheese on them? Sandwiches are most often made with buttered bread or an unspecified margarine which may or may not contain fresh dairy products. If I ask people they do their best to find out for me but even then they don’t always know. If I choose something but ask not to have the dressing/sauce whatever aspect that might contain fresh dairy or milk protein, I can’t always guarantee that special request will be met. There’s always an element of risk when selecting an item off the menu, unless I stick to something I’m sure is fresh dairy/milk protein free.

Parties, barbeques and family gatherings also pose a problem. I don’t like to be troublesome and have to request a dairy free selection but then again I don’t want to make myself ill by unwittingly eating something that contains fresh dairy or milk proteins. So I have to carefully select what to eat from the selection available or take something dairy free to add to the buffet. (Luckily for most family events we contribute something, so this isn’t a problem).

All this makes going out that little bit more difficult. If I really wanted to play it safe I wouldn’t go out anywhere and where’s the fun in that? A food intolerance like this shouldn’t be something that restricts me that much. The rest of the M.E. symptoms do that as it is, why should I let this extra thing restrict the bit of fun I can still have?!

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Exam’s over…now what?

Well I made it through my exam! It wasn’t half as bad as I was anticipating and I feel I may actually have managed to answer the questions well enough to pass. But who knows?! We just have to wait and see what results day brings. I’d like to thank every single person who wished me luck on my facebook and twitter accounts and for all the prayers I know have been said for me of late. I appreciate every single one and if I haven’t replied to the messages it’s not because the message isn’t appreciated it’s just I fell behind when I was conserving energy and I’ve found it hard to catch up!!

I think the events of recent weeks are really starting to catch up with me now though; despite getting the best night’s sleep I’ve had in about a month last night my body has started to fall apart. Pain levels have increased, joints keep popping out and I’m now paying attention to some of the other things that have started plaguing me like the recurring nerve pain where I had shingles earlier this year!

Despite this I have started making cards again today, it’s something I’ve been longing to do for a while and had all the materials still. I just hadn’t had enough energy whilst studying. Now I’m free for a few months I thought I’d start dabbling in it again. I’d forgotten how enjoyable it is to do!

I’ve also started making plans of how to make the most of my free time and summer (if the weather realises it is summer!). Trips out are in the pipeline, as is a bit of gentle gardening and a sort out of my room. Oh and of course there’s photographing the Trooping of the Colour as it passes over my garden before reaching London on The Queen’s Official Birthday! All these are things I’m unable to do when I’m studying as my degree takes priority over everything but my health.

I’m looking forward to meeting up with friends, writing on my blog a lot more, getting out and generally relaxing! Not having to worry about studying is like a weight’s been lifted off my shoulders. I’m hoping over the next few months despite planning to do all these things I will start improving again healthwise and find myself in a better position when I start my next university module in October. All these things will be carefully planned and pacing myself is still paramount if I’m to succeed in getting my health to improve!

For now I leave you with a massive thank you for your continuous support and if you’re a student or potential student with a chronic illness reading this, I’ve posted some study/revision tips here so hop over there and take a look if you’re interested!

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Exam’s over so… My Revision Tips!

To say this revision period hasn’t been easy for me is an understatement but I have managed to come up with some (hopefully useful) tips for revising in stressful circumstances and with deteriorating health. (Yes my health has taken a battering of late and as a result I’m facing a difficult few weeks of crawling my way back to where I was). Anyway here’s my tips:

Make a Plan
This may seem obvious but it’s something I was unable to do until the last week. I seriously advise making a plan or at the very least a list of the topics that need to be revised – that way you can tick things off on the list and see your progress which helps to alleviate some of the panic!

Look back through TMAs
TMAs, or just previous assignments at other unis, are a wealth of revision notes – you had to apply course concepts to them right? Therefore by reading back through them you can easily revise a few of them! These often also provide a context for the concepts. Having read through my TMAs the night before my exam I was semi-prepared for a question that came up which I hadn’t actually revised for!

Use earplugs
If you find noise distracting I really recommend using earplugs. They’ve been absolutely brilliant for me, and I have to thank a good friend of mine for sending me some to try since the ones I had hurt my ears! I’ll be ordering some of this type ready for next year’s studying.

Take rests when you need them
Sounds so obvious but there literally isn’t any point in ploughing on through feeling rough it only serves to make you feel worse. It’s not worth it and only sets revision back. Do something relaxing during these breaks, something that allows your brain to rest. For me I’ve been using guided meditations during my breaks which I found really helped.

Listen to advice
It took several friends and family members to persuade me resting was best and there was no point in pushing myself too much; I wouldn’t have been trying if it hadn’t been for the situation I was in. I wish I’d listened to them sooner as I might not be in quite the same state I am in now!

Find the best method for you
I can’t claim to have found my perfect revision technique yet but I have found ‘just reading’ doesn’t quite cut it. I have to write things down in some way. Saying that a lot of my last minute revision was just skim reading as I felt covering more topics in the time I had would serve me better. Connecting it with something in my real life helps too if I can do it. Whether it be mind maps, flash cards, quizzes, rewriting notes…do whatever works for you. If it makes it stick in your mind use that method. I aimed to give flashcards and quizzes a go but didn’t get a chance for this course! Perhaps for my next exam!!

And finally…
Don’t panic. You can do this. It may seem insurmountable but remember it’ll be worth it. I’ve had my moments during this revision period where I’ve seriously considered giving up on my degree completely. It seemed impossible to revise with everything that was going on and my health deteriorating. But thanks to some truly amazing and supportive friends and family I’ve decided to continue. I’m not convinced this exam will prove the best possible grade, but I am happy in the knowledge I did my best in some very difficult circumstances; circumstances that would be challenging for most healthy people, let alone those with a chronic illness, and that will have to suffice. Besides I might surprise myself yet!

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