Smiling Clare

Living Life, Within the Limits of Chronic Illness

Exams with OU

So I can’t remember if I’ve mentioned about the exam arrangements available if you have declared a disability or chronic illness when studying at The Open University. If I have this post is somewhat of a repeat but if not…well here you go:

I recently sat my first exam with OU and was very nervous about it to say the least. The pressure of having to be well enough to think on a particular day is probably unimaginable to those who don’t have a chronic illness. Actually that’s probably a lie, pretty much everyone gets nervous and feels under pressure when it comes to exams they want to do well in, but with a chronic illness like M.E there’s an added pressure of not knowing how well you’re going to feel, and then there’s the fact pressure can make this illness worse. A tricky situation if ever there was one!

Anyway OU have been amazing at helping me with my exam needs. I can’t write for long, concentrate for long periods and travelling exhausts me. So what’s the solution? Well an exam sat at home, on a computer with extra time and rest periods of course!

Just because you have a disability or chronic illness doesn’t mean you can’t sit exams and get a degree. I’m proof of the former (as I’m sure many people are) and I’m on my way to proving the latter!

So how does it all work?

Well I had to declare my illness as a disability with the OU and request special exam arrangements. When I first started at OU I mentioned I had ME/CFS and I’d explained I’d probably need additional arrangements for my exams. I was told that I’d have to request this early on during a module with an exam in order for the arrangements to be put in place.

Until October 2013 I had no modules with exams, they were all EMAs. But for B203 I had to put the arrangements to the test. I got an email about three months into the course asking me to complete an online form stating what additional arrangements I thought I’d need and they’d see if they could accommodate them. I’d need a letter from my doctor confirming my illness and explaining how it affects my ability to sit an exam. I essentially had no idea what would help, although my Disabled Students Allowance needs assessment had given me a few ideas; the use of Dragon Naturally Speaking software was an option, as was sitting the exam at home, extra time and rest breaks were also mentioned.

In the end I decided I could manage to type for the exam period, although Dragon Naturally Speaking software does come in useful I don’t use it that much – I need to train it more and haven’t had the chance during my courses, besides sometimes I find talking more exhausting than typing even though typing can hurt! So on the form I asked to sit the exam at home, on the laptop provided to me through DSA using Microsoft Word and with extra time and rest breaks. The most difficult part I found was deciding how much extra time and rest breaks I’d need. In the end I settled for 45 minutes for each. There was also the option of stating any times you are unable to sit an exam due to your disability, I used this to say when my concentration is usually at its best; after 11am but before 5pm.

Thankfully this was all accepted and that was how I was allowed to sit my exam. It started at 11:30am and would finish at 4pm unless I completed it earlier. The invigilator would come to my house and the exam would be sat in my living room. That was some pressure off me!

On the day itself I actually used all the rest time allowed, and realistically could probably have done with a little more – something I now know for next time – but I didn’t use all the extra time for answering. I finished with 30 minutes of the time I had allowed to spare. Not a bad thing as it gave me time to check my answers over and make any necessary changes.

Although my answers were all typed on the computer and saved to a USB flash drive provided by the OU, I had to print a copy of my answers off to submit with the exam paper. This was easy done, although I was a little worried as me and the printer don’t always have the best working relationship!!

All these additional arrangements made it possible for me to sit the exam on my module, without them I don’t think it would’ve been possible. After about half hour of writing by hand my writing becomes almost illegible; even I struggle to read what I’ve written let alone anyone else! My concentration tends to be long gone after an hour of continuous thinking, so rests are essential, they allowed me to pace myself a little – this doesn’t mean I didn’t suffer after the exam (I did) but I’m certain it lessened the severity of the symptoms I experienced. Sitting the exam at home removed the need to travel, something I find exhausting at the best of times; I haven’t really left my home county for years, and only venture to surrounding towns on occasion. In fact recently leaving the house to go anywhere that might be busy has been a rare occurrence because I have been so unwell.

Anyway I’m hoping sharing my experience of sitting exams with the OU will help others with a chronic illness who are considering studying. It can be done. I can’t deny it is tough, incredibly so at times, but with the help and support of friends, family and the place you’re studying at it is possible! So whatever you do don’t give up!!

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So I’m in a wheelchair, why can’t I wear a dress?!

The weather is gorgeous and I’m going out. I’ve got the clothes picked, a lovely dress I’ve had in my wardrobe a while but no opportunity to wear. But I’m going to be using my wheelchair. Shouldn’t be a problem should it? Wrong.

You see this dress sits above my knees. So to keep my modesty, not embarrass myself or give anybody a shock I need to sit with my legs together. Simple I hear you say? Think again. Have you ever looked at the position of foot pedals on a standard wheelchair? They’re not ideally suited to this. Take a look now:

Now do you see my predicament? The place I need to put both my feet is actually thin air. I could of course sit at an angle, squeezing both feet onto one foot pedal but I suspect after a while this will become uncomfortable. Another potential way round it is to sit with my knees together but feet apart; one on each foot pedal, but again this will cause pain after a while.

So what’s the solution? Should I not wear some of the lovely dresses I own simply because I’m in a wheelchair? Do I need to change my shopping habits and dismiss a truly nice dress simply on the basis of it’s length possibly being inappropriate to be worn in wheelchair? I hope not. Surely there has to be a way around this.

I suspect the solution is going to involve my family making modifications to my wheelchair…once we come up with a suitable idea! Watch this space.

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Module Results…!

I didn’t really expect to be writing this post so soon but my module results have been released early so here I am.

So I passed B203 Buness Functions in Context. Just. By 3 marks. There was only those three marks between a pass and a resit. I can’t deny at first I was devastated. There was a 30+ percentage point drop between my exam result and my overall coursework score (OCAS). I was in tears. I knew I had passed, and done so under tremendously difficult circumstances but I couldn’t believe how close I’d come to failing. And as always there was a part of me questioning if I’d been well, would the result have been much better?!

But then I remembered the circumstances I’d been revising in. How much I’d been struggling. How close I’d come to giving up entirely. After a few hours contemplating that, I began to feel happier. I’d passed. There was no need a resit. The course books could be put on a bookshelf ready for reference in the future if needed. I could relax and enjoy my summer off. I’d done my best under what would’ve been difficult circumstances for anyone but harder for someone with a chronic illness like M.E. I should be proud of what I’d achieved. So I am.

I found it was so easy to forget how much I was struggling during the revision period. Not only did I have my chronic illness to cope with but I was dealing with the loss of my Grandad and his funeral. I think I mentioned in an earlier post that if it hadn’t been for friends and family talking me round I would’ve given up on my degree entirely, it all seemed too much. Looking back and reminding myself of this I realised passing was a major achievement. So it’s not the best grade in the world, but it is a pass. And that is what’s important.

Over a few days I’ve realised the significance of managing to pass what everyone had described as a difficult module, under the circumstances I was in at the time. Yes I had hoped and dreamed for a better result. But like I said it is a pass. And that is all that matters. Being a perfectionist at heart accepting this doesn’t come easy but I slowly am. I received some wonderful supportive messages from people on Facebook and Twitter which were all much appreciated and got me through the tough times during results day. So if any of you are reading this, thank you. Those words meant the world to me.

To anyone else struggling to come to terms with an exam result that was worse than expected, don’t worry about it. What’s done is done. If you failed and you’re offered a resit spend the time revising and know you can do it. Someone somewhere will always be rooting for you. And if you’ve passed but not received the grade you expected, wanted or dreamed of it’s not the end of the world. It may well feel like it but it’s not. Focus on the fact you passed. You can put those course books away and move on to your next module or the next stage of your life. You did it. You passed. That’s all that really matters.

*If you’re unsure of any of the terms used here please look at the glossary page (link at top of blog) or comment if it isn’t listed there. I normally link any terms direct to the glossary page but I am writing this on a tablet and cannot do so.*

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Well This is Exhausting…

Who knew life without the internet is so much more exhausting? I didn’t. Three whole days without the internet. Three days without my social lifeline. Three days of actually doing things and socialising with people face-to-face. That is exhausting. More exhausting than I knew. Anyway I’m back online and blogging again.

Things for me are proving quite challenging right now. I’ve spent a week on crutches unable to put weight on my knee. Judging by the fact something inside it moved and ‘popped’ one day then started feeling a bit better I’m guessing I must’ve partially dislocated something. If I’d known that I would’ve gone to the doctors but I thought it was just muscle. Anyway it’s feeling a lot better now and I’m hobbling around the house unaided. If it happens again I’ll be sure to go to the doctors and get checked out!

So now I’m slowly recovering from that I’ve found myself with a lovely cold. I’ve made myself a makeshift bed on the sofa and have been watching films while occasionally dozing. I think plenty of rest is needed at the moment. As if to make that point clear I slept 6 hours straight last night, a miracle in itself!

Viruses of any kind really seem to like me since I got M.E. I don’t think I ever fully appreciated how strong my immune system was before. Now I long to have that strong immune system back; this weakened one really does let me pick up almost anything going! But with plenty of rest I’ll recover, even if it is a slower than normal recovery. Here’s hoping another virus doesn’t take a liking to me in the meantime!

Despite feeling quite poorly I’m working on a few posts for my blog, not onscreen but in my mind; I have some ideas flowing so am scribbling them down and will be creating the posts as I start feeling a little better. So keep an eye out for those in the (hopefully) near future!

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