Smiling Clare

Living Life Within the Limits of Chronic Illness

Category: Severe ME Awareness

Severe ME Awareness: My Part

I mentioned in my previous post about Severe ME Awareness, that I aimed to be taking part in two campaigns I’d come across which involved taking a photo of myself and posting it on social media. I’m happy to announce that despite a challenging week, which saw me unable to use my right arm for a few days due to muscle weakness, I have managed it! So I thought I’d share my photos and the links to the campaigns again in case you want to find out more.

The Black Dress Selfie

This campaign asks that you wear black dress on August 8th. Something I have managed to do today. Even better it happened to be a Little Black Dress just like the one in the info graphic! If you follow me on Instagram you’ll have seen a slightly different photo to this one, owing to the fact Instagram wouldn’t let me use this one due to its size. More information on this campaign can be found here:


My Black Dress Selfie.


Black Dress Selfie Info Graphic


Stop The ME Cover Up

This campaign requested particpants covered up partially or completely with a message promoting awareness of severe ME. I took this photo earlier in the week (pacing myself you see!) but coming up with the message was a little more difficult. I’m hoping what I came up with does the job. More information on this campaign is available at: and

My photo for the Stop the ME Cover Up campaign.

Please let me know if you’ve played your part in any of these campaigns, or any others you’ve come across! I’d love to see your photos too.

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Severe M.E. Awareness

I recently came across a couple of campaigns to help raise awareness of severe M.E. They both struck a chord with me and I plan on participating. But first I thought I’d share them with you in the hope you will also participate and help us raise awareness of severe M.E. Both campaigns are easy to participate in and won’t take much time or energy; but you will need a camera and a social media account!

The first campaign I came across is The Black Dress Selfie.

The idea here is that on August 8th you wear black dress, posting a photo of you in the outfit on social media along with the Black Dress Selfie info graphic, provided below. If you’re female and have a Little Black Dress, all the better. But if you’re male or don’t own a black dress, don’t worry just get a little creative; in my view ‘Black Dress’ could also mean wearing a black outfit.

More information on this campaign is available here:

The second campaign I’ve come across is Stop The ME Cover Up

The idea of this campaign is to raise awareness of how ignored severe M.E. is. So for this one participants are asked to take a photo of themselves totally or partially covered up, with a message promoting awareness of severe M.E. This can be something simple such as the name of the campaign; Stop The ME Cover Up, a phrase which describes the current level of awareness (“Out of sight, Out of mind” springs to my mind!) or something more revealing about the affects of severe M.E.

More information on this campaign can be found on these sites:

I plan on participating in both campaigns on August 8th, I hope to post my photos both on here and on all my social media accounts. I’ll be using the hash tags #BlackDressSelfie #BlackDressDayForSevereME #StopTheMECoverUp along with my usual #ME #MEAwareness and #SevereMEAwareness hash tags. I’d love to see your selfies for this cause too! Let me know if you get involved!!

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