Comments on: How Physiotherapy is Helping Me https://www.smilingclare.co.uk/2020/04/29/how-controversial-graded-exercise-is-helping-me/ Living Life, Within the Limits of Chronic Illness Wed, 18 Nov 2020 15:10:45 +0000 hourly 1 https://wordpress.org/?v=6.9 By: Clare https://www.smilingclare.co.uk/2020/04/29/how-controversial-graded-exercise-is-helping-me/#comment-500 Mon, 11 May 2020 11:09:55 +0000 https://www.smilingclare.co.uk/?p=787#comment-500 In reply to Sophie.

That’s really interesting that you have also found a bendy diagnosis makes a big difference in the way so many specialities treat you! I’m kinda relieved to hear it’s not just me who has found that. Over the past 15 years (spent with “just” an ME diagnosis) I have found the same – I improve over the spring-autumn months but slip back once winter kicks in catching bug after bug after bug! This winter, I’m not quite sure why/how, but I managed to avoid getting quite so many bugs so didn’t slip back quite as far. Thank you, I hope you can find a way to avoid catching quite so many bugs like I have (I wish I could advise you how, but I’ve done nothing different to what I have other winters; I’m hoping I didn’t just get lucky with this last winter!) and that you are staying safe in the current situation x

]]> By: Sophie https://www.smilingclare.co.uk/2020/04/29/how-controversial-graded-exercise-is-helping-me/#comment-498 Tue, 05 May 2020 10:45:26 +0000 https://www.smilingclare.co.uk/?p=787#comment-498 As a bendy fellow fogger, I can confirm that the bendy diagnosis makes a big difference to the way many specialities treat you. With ‘just’ an ME diagnosis, it seemed the assumption was my problems with physical treatments were psychological. Since the EDS-H diagnosis, my symptoms have been taken more seriously, and more allowances for the effects of the ME are made. I agree that a good physiotherapist makes a difference too, but even these I’ve found have a better attitude to me since I was diagnosed with the EDS. Glad to hear you’re pacing your activity increases, and adapting to feedback from your body. Unfortunately, I’ve found that, although I can improve over the spring to autumn months, once winter kicks in I slip backwards, as I pick up bug after bug, and I’m back at square one in the Spring. Hope you don’t experience the same, and continue to be able to do more.

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