Comments on: Surviving Home Alone https://www.smilingclare.co.uk/2019/03/01/surviving-home-alone/ Living Life, Within the Limits of Chronic Illness Wed, 06 Mar 2019 09:26:45 +0000 hourly 1 https://wordpress.org/?v=6.9 By: Clare Wood https://www.smilingclare.co.uk/2019/03/01/surviving-home-alone/#comment-114 Wed, 06 Mar 2019 09:26:45 +0000 https://www.smilingclare.co.uk/?p=557#comment-114 In reply to Helen.

I am so sorry you are in a situation such as you are. M.E. is so cruel. Thank you for the suggestions, I really appreciate them. Most of what you suggest I already do, although clothes always takes more than 2 moves to get on. I am glad you have managed to put plans in place which you are at peace with, I have no idea what I would do without my family but I know how very lucky I am to have them right now and I hold onto that each and every day. I only hope things improve for you somehow, and you can keep smiling despite the cruelness of M.E.

]]> By: Helen https://www.smilingclare.co.uk/2019/03/01/surviving-home-alone/#comment-112 Tue, 05 Mar 2019 09:46:02 +0000 https://www.smilingclare.co.uk/?p=557#comment-112 That was a lovely post. Thank you. I am also in the moderate-to-severe area. I live mostly alone and within the next year I will be living alone entirely. I am 60 years old. There is no family to help me. I have made several adjustments that I am offering us suggestions it may be of some assistance. I changed what I wear. Everything I wear now basically could go on and 2 moves. I keep food and water by my bed. I can’t always get out. I have a great deal of difficulty eating. I can’t cook most of the time. When I have strength I cut up small things like vegetable trays, small pieces of meat and cheese. That is so if I drop them it is a disaster. I rest a lot and I just didn’t feel guilt a long time ago. The brain fog is particularly bad and getting worse. I often cannot trust my own decision-making. There will come a time when I will not be able to care for myself no matter how many outside resources I pull in. I will not go into care. I have made arrangements with my doctors physician-assisted death. This is legal in Canada. When I get to the stage, assuming that I do, with a brain fog becomes so bad that I cannot be trusted to live alone that is what will be put into action. I know this is not an optimistic message. Me makes you face reality like nothing else. This is simply the way things are. I’m so glad you have family.

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